{"id":10279,"date":"2021-11-18T22:20:13","date_gmt":"2021-11-18T22:20:13","guid":{"rendered":"https:\/\/www.soltel.es\/?page_id=10279"},"modified":"2025-10-10T08:39:22","modified_gmt":"2025-10-10T08:39:22","slug":"key2rare","status":"publish","type":"page","link":"https:\/\/www.soltel.es\/en\/key2rare\/","title":{"rendered":"KEY2RARE"},"content":{"rendered":"<section class=\"l-section wpb_row us_custom_52331fc0 fondo-metalico height_auto color_footer-bottom\"><div class=\"l-section-h i-cf\"><div class=\"g-cols vc_row via_grid cols_1 laptops-cols_inherit tablets-cols_inherit mobiles-cols_1 valign_middle type_default stacking_default\" style=\"--gap:0rem;\"><div class=\"wpb_column vc_column_container\"><div class=\"vc_column-inner\"><div class=\"w-separator size_small\"><\/div><div class=\"w-html\"><canvas id=\"glitterCanvas\"><\/canvas><\/div><div class=\"w-hwrapper valign_top align_center\"><h3 class=\"w-text us_custom_b964646e has_text_color us_animate_this\" id=\"servicios-grid\"><span class=\"w-text-h\"><span class=\"w-text-value\">KEY2RARE<\/span><\/span><\/h3><\/div><\/div><\/div><\/div><\/div><\/section><section class=\"l-section wpb_row height_small\"><div class=\"l-section-h i-cf\"><div class=\"g-cols vc_row via_grid cols_1 laptops-cols_inherit tablets-cols_inherit mobiles-cols_1 valign_top type_default stacking_default\"><div class=\"wpb_column vc_column_container\"><div class=\"vc_column-inner\"><nav class=\"g-breadcrumbs separator_icon align_center\" itemscope itemtype=\"http:\/\/schema.org\/BreadcrumbList\"><div class=\"g-breadcrumbs-item\" itemscope itemprop=\"itemListElement\" itemtype=\"http:\/\/schema.org\/ListItem\"><a itemprop=\"item\" href=\"https:\/\/www.soltel.es\/en\/\"><span itemprop=\"name\">Home<\/span><\/a><meta itemprop=\"position\" content=\"1\"\/><\/div><div class=\"g-breadcrumbs-separator\"><i class=\"far fa-angle-right\"><\/i><\/div><div class=\"g-breadcrumbs-item\">Pages<\/div><\/nav><\/div><\/div><\/div><\/div><\/section><section class=\"l-section wpb_row height_medium\"><div class=\"l-section-h i-cf\"><div class=\"g-cols vc_row via_grid cols_2-3 laptops-cols_inherit tablets-cols_inherit mobiles-cols_1 valign_top type_default stacking_default\"><div class=\"wpb_column vc_column_container\"><div class=\"vc_column-inner\"><div class=\"w-image us_custom_f3fb4d7f align_center has_bg_color\"><div class=\"w-image-h\"><img decoding=\"async\" width=\"963\" height=\"444\" src=\"https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/10\/KEY2RARE_sharp.png\" class=\"attachment-large size-large\" alt=\"\" loading=\"lazy\" srcset=\"https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/10\/KEY2RARE_sharp.png 963w, https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/10\/KEY2RARE_sharp-300x138.png 300w, https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/10\/KEY2RARE_sharp-600x277.png 600w, https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/10\/KEY2RARE_sharp-150x69.png 150w\" sizes=\"auto, (max-width: 963px) 100vw, 963px\" \/><\/div><\/div><\/div><\/div><div class=\"wpb_column vc_column_container\"><div class=\"vc_column-inner\"><div class=\"wpb_text_column us_custom_59aa275c\"><div class=\"wpb_wrapper\"><h3>KEY2RARE<\/h3>\n<div class=\"wpb_column vc_column_container\">\n<p class=\"translation-block\">The <strong>objective<\/strong> of the <strong>Key2Rare<\/strong> project is to develop a <strong>Data Discovery Tool for Rare Disease Research<\/strong> that will facilitate researchers' access to clinical, genomic, and epidemiological information relevant to the study of rare diseases. This tool will consist of a platform that, through a <strong>federated architecture<\/strong>, allows researchers to locate, evaluate, and request access to clinical, genomic, or epidemiological datasets, while maintaining the sovereignty and confidentiality of the information in each organization's repositories.<\/p>\n<p>The purpose of data discovery is to explore and find value in large volumes of data, which is crucial in the case of rare diseases due to the dispersion of data and their low prevalence, making them difficult to study. The secondary use of data in the <strong>European Health Data Area (EHDS)<\/strong> This represents a great opportunity for research into <strong>Rare Diseases<\/strong>.<\/p>\n<p>The tool will integrate with local metadata catalogs, use IDS connectors and a metadata federator to streamline the search for relevant information, and offer a simplified access request flow, taking into account the legal requirements established by the GDPR and the EHDS.<\/p>\n<p><em>This project has the financial support of the European Union through the Next Generation EU funds within the framework of the 2024 call for the granting of aid, in the field of digitalization, for the digital transformation of strategic productive sectors through the development of technological products and services for Data Spaces, of the State Secretariat for Digitalization and Artificial Intelligence (Ministry of Digital Transformation and Public Function).<\/em><\/p>\n<\/div>\n<\/div><\/div><div class=\"w-image align_none\"><div class=\"w-image-h\"><img decoding=\"async\" width=\"1024\" height=\"92\" src=\"https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/08\/financiado-ue-ministerio-transformacion-digital-plan-recuperacion-transformacion-resiliencia-1024x92.png\" class=\"attachment-large size-large\" alt=\"\" loading=\"lazy\" srcset=\"https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/08\/financiado-ue-ministerio-transformacion-digital-plan-recuperacion-transformacion-resiliencia-1024x92.png 1024w, https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/08\/financiado-ue-ministerio-transformacion-digital-plan-recuperacion-transformacion-resiliencia-300x27.png 300w, https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/08\/financiado-ue-ministerio-transformacion-digital-plan-recuperacion-transformacion-resiliencia-600x54.png 600w, https:\/\/www.soltel.es\/wp-content\/uploads\/2025\/08\/financiado-ue-ministerio-transformacion-digital-plan-recuperacion-transformacion-resiliencia-150x14.png 150w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/div><\/div><\/div><\/div><\/div><\/div><\/section><section class=\"l-section wpb_row height_small\"><div class=\"l-section-h i-cf\"><div class=\"g-cols vc_row via_grid cols_3 laptops-cols_inherit tablets-cols_inherit mobiles-cols_1 valign_top type_default stacking_default\"><div class=\"wpb_column vc_column_container\"><div class=\"vc_column-inner\"><div class=\"w-hwrapper valign_top align_none\"><\/div><\/div><\/div><div class=\"wpb_column vc_column_container\"><div class=\"vc_column-inner\"><div class=\"w-btn-wrapper align_center\"><a class=\"w-btn us-btn-style_6\" href=\"\/en\/portfolio\/salud\/\"><span class=\"w-btn-label\">Go back<\/span><\/a><\/div><\/div><\/div><div class=\"wpb_column vc_column_container\"><div class=\"vc_column-inner\"><\/div><\/div><\/div><\/div><\/section>","protected":false},"excerpt":{"rendered":"","protected":false},"author":4,"featured_media":10267,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-10279","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - 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